Sjogren's syndrome and small nerve fiber neuropathy
Hello beautiful FB family,
Due to such awful fatigue,body and nerve pain it has taken me so long to do a month long low impact program. It makes me so angry because i feel like a failure. I was gaining muscle and having so much fun working out and now it depends on my fatigue if I can do a workout. Sjogren's causes many people with it to not feel hunger at all. When ai tell you there are days when I may only get 200 calories in the whole day I am not kidding. I'm working with a nutritionist who also wants me to exercise to keep me moving. I miss my weights who I I was before. I feel like I no longer exist. The Sjogren's your system to severely slow down the food moving through your system. Plus it makes it hard to swallow certain things. I am fed up and hate it. I so desperately want me back. I'm trying to eat as much as I can but it's so hard when you throw up for no reason and can't eat. I have found out that I can no longer eat hardly anything sweet. The only sweet thing I can eat are Popsicles. I also can't taste salt in food so I add salt even if it already has salt. I eat cashews and spicy peanuts since I now need very strong flavors. We stopped at Arby's on our way back from one of my many appointments and I barely ate even a half of that sandwich and what I did eat had to have horsey sauce with literally each bite. I hate wasting food but there was zero way I can eat a whole sandwich.
Please tell me there is someone here is knows this struggle. Brain fog is awful. If I am too tired or stressed it messes with my speech as well. Boy life can throw you overboard literally overnight. I forgot to mention that I've lost so much weight simply by not moving. This dang disease is awful.
Sjogren's syndrome and small nerve fiber neuropathy
Hello beautiful FB family,
Due to such awful fatigue,body and nerve pain it has taken me so long to do a month long low impact program. It makes me so angry because i feel like a failure. I was gaining muscle and having so much fun working out and now it depends on my fatigue if I can do a workout. Sjogren's causes many people with it to not feel hunger at all. When ai tell you there are days when I may only get 200 calories in the whole day I am not kidding. I'm working with a nutritionist who also wants me to exercise to keep me moving. I miss my weights who I I was before. I feel like I no longer exist. The Sjogren's your system to severely slow down the food moving through your system. Plus it makes it hard to swallow certain things. I am fed up and hate it. I so desperately want me back. I'm trying to eat as much as I can but it's so hard when you throw up for no reason and can't eat. I have found out that I can no longer eat hardly anything sweet. The only sweet thing I can eat are Popsicles. I also can't taste salt in food so I add salt even if it already has salt. I eat cashews and spicy peanuts since I now need very strong flavors. We stopped at Arby's on our way back from one of my many appointments and I barely ate even a half of that sandwich and what I did eat had to have horsey sauce with literally each bite. I hate wasting food but there was zero way I can eat a whole sandwich.
Please tell me there is someone here is knows this struggle. Brain fog is awful. If I am too tired or stressed it messes with my speech as well. Boy life can throw you overboard literally overnight. I forgot to mention that I've lost so much weight simply by not moving. This dang disease is awful.