I have feen following FB for 6(?) years now, and I love this community, and am so thankful for Kelli and Daniel!!! I have been struggling since I was 15 with injury and health issues. I love to be active, but it has not been easy. I recently have been diagnosed with Hypermobile Ehler's Donlose (hEDS), a genetic disease of the connective tissues in the body. This manifests in various ways of complications. For me, I feel lucky to have not had to deal with too many issues, however I suffer from chronic pain, movement issues, injuries, anxiety, brain bog, stomach problems, and more due to this.
I am 21, and have learned there is no treatment....only management.
Kelli's journey (and those of you on here) has greatly inspired me to figure out what is happening with my body. Listening to my body's signals and respecting it, as well as continuing to live on when I have been in my darkest times.
I am looking for any advice, help, support, information....anything you know about hEDS. Thank you so much, and love to you all.
Ehler's Donlose
Dear FB Fam,
I have feen following FB for 6(?) years now, and I love this community, and am so thankful for Kelli and Daniel!!! I have been struggling since I was 15 with injury and health issues. I love to be active, but it has not been easy. I recently have been diagnosed with Hypermobile Ehler's Donlose (hEDS), a genetic disease of the connective tissues in the body. This manifests in various ways of complications. For me, I feel lucky to have not had to deal with too many issues, however I suffer from chronic pain, movement issues, injuries, anxiety, brain bog, stomach problems, and more due to this.
I am 21, and have learned there is no treatment....only management.
Kelli's journey (and those of you on here) has greatly inspired me to figure out what is happening with my body. Listening to my body's signals and respecting it, as well as continuing to live on when I have been in my darkest times.
I am looking for any advice, help, support, information....anything you know about hEDS. Thank you so much, and love to you all.